LobbyingNational Organization of Rare Disorders lobbying by quarter
National Organization of Rare Disorders's latest lobbying report covers Q2 2026, at $30K. The four quarters Q4 2025–Q3 2026 total $90K. Its first report covers Q2 2025; the issues it reports most are Health Issues and Medicare/Medicaid.
National Organization of Rare Disorders
- Latest quarter
- No record
- Q3 2026 · 0 reports
- Last 12 months
- $90K
- Last 4 quarters
- vs last quarter
- −100.0%
- Q3 2026 against the quarter before
- First report
- Q2 2025
- The first quarter a report named it
Lobbying by quarter
| Quarter | Amount | Reports |
|---|---|---|
| Q2 2025 | $10K | 1 |
| Q3 2025 | $30K | 1 |
| Q4 2025 | $30K | 1 |
| Q1 2026 | $30K | 1 |
| Q2 2026 | $30K | 1 |
| Q3 2026 | $0 | 0 |
By issue
- Health issues$43.3K · 5 reports
- Medicare and Medicaid$43.3K · 5 reports
- Pharmacy$43.3K · 5 reports
An issue's amount splits each report's amount equally over the issues the report lists.
Who was lobbied
- Centers For Disease Control & Prevention (CDC)5 reports
- Food & Drug Administration (FDA)5 reports
- Health & Human Services, Dept of (HHS)5 reports
- HOUSE OF REPRESENTATIVES5 reports
- Natl Institutes of Health (NIH)5 reports
- SENATE5 reports
Firms it paid
| Firm | ||
|---|---|---|
| James P. Keese | $130K | 5 quarters |
Former officials lobbying for it
No lobbyist with a covered position.
Lobbying reports
| Filed by | ||
|---|---|---|
| 07/20for Q2 | James P. Keese | $30K |
| 04/20for Q1 | James P. Keese | $30K |
| 01/20for Q4 2025 | James P. Keese | $30K |
| 25/10/20for Q3 2025 | James P. Keese | $30K |
| 25/08/06for Q2 2025 | James P. Keese | $10K |
| 25/07/21for Q2 2025 | James P. Keese | Under $5,000 |