LobbyingEverylife Foundation for Rare Diseases lobbying by quarter
Everylife Foundation for Rare Diseases's latest lobbying report covers Q2 2026, at $70K. The four quarters Q4 2025–Q3 2026 total $220K. Its first report covers Q4 2022; the issues it reports most are Health Issues and Budget/Appropriations.
Everylife Foundation for Rare Diseases
- Latest quarter
- No record
- Q3 2026 · 0 reports
- Last 12 months
- $220K
- Last 4 quarters
- vs last quarter
- −100.0%
- Q3 2026 against the quarter before
- First report
- Q4 2022
- The first quarter a report named it
Lobbying by quarter
| Quarter | Amount | Reports |
|---|---|---|
| Q4 2022 | $40K | 2 |
| Q1 2023 | $60K | 2 |
| Q2 2023 | $40K | 2 |
| Q3 2023 | $40K | 2 |
| Q4 2023 | $40K | 2 |
| Q1 2024 | $50K | 2 |
| Q2 2024 | $95K | 3 |
| Q3 2024 | $50K | 3 |
| Q4 2024 | $40K | 3 |
| Q1 2025 | $50K | 2 |
| Q2 2025 | $60K | 2 |
| Q3 2025 | $70K | 2 |
| Q4 2025 | $40K | 2 |
| Q1 2026 | $110K | 2 |
| Q2 2026 | $70K | 2 |
| Q3 2026 | $0 | 0 |
By issue
- Health issues$611.7K · 30 reports
- Budget and appropriations$146.7K · 17 reports
- Medicare and Medicaid$96.7K · 13 reports
An issue's amount splits each report's amount equally over the issues the report lists.
Who was lobbied
- HOUSE OF REPRESENTATIVES32 reports
- SENATE32 reports
- Centers For Medicare and Medicaid Services (CMS)1 reports
Firms it paid
| Firm | ||
|---|---|---|
| In-houseEverylife Foundation for Rare Diseases | $490K | 15 quarters |
| Faegre Drinker Biddle & Reath | $340K | 15 quarters |
| Ipolicy Solutions | $25K | 3 quarters |
Former officials lobbying for it
| Former position | ||
|---|---|---|
| NICHOLAS PETER MANETTO | Press Secretary and Legislative Assistant, Rep. Christopher H. Smith (R-NJ) | Q2 2026 |
| JENNIFER RACHEL LEIB | Fellow, Senate Committee on Health, Education, Labor and Pensions | Q3 2024 |
| RYAN SHAY | Leg. Dir., Rep. Susie Lee (D-NV); Sr. Leg. Asst & Leg. Asst,Rep. AndreCarson (D-IN); Leg. Aide & Leg. Corrs., Sen.Maria Cantwell (D-WA);Staff Asst, Senate Committee on Energy & Natural Resources | Q1 2024 |
Lobbying reports
| Filed by | ||
|---|---|---|
| 07/20for Q2 | Faegre Drinker Biddle & Reath | $30K |
| 07/17for Q2 | In-house | $40K |
| 04/20for Q1 | In-house | $70K |
| 04/17for Q1 | Faegre Drinker Biddle & Reath | $40K |
| 01/19for Q4 2025 | Faegre Drinker Biddle & Reath | $20K |
| 01/15for Q4 2025 | In-house | $20K |
| 25/10/17for Q3 2025 | Faegre Drinker Biddle & Reath | $10K |
| 25/10/16for Q3 2025 | In-house | $60K |
| 25/07/17for Q2 2025 | Faegre Drinker Biddle & Reath | $20K |
| 25/07/17for Q2 2025 | In-house | $40K |
| 25/04/21for Q1 2025 | In-house | $30K |
| 25/04/10for Q1 2025 | Faegre Drinker Biddle & Reath | $20K |
| 25/01/24for Q4 2024 | Ipolicy Solutions | Under $5,000 |
| 25/01/17for Q4 2024 | Faegre Drinker Biddle & Reath | $20K |
| 25/01/16for Q4 2024 | In-house | $20K |
| 24/10/18for Q3 2024 | In-house | $30K |
| 24/10/18for Q3 2024 | Faegre Drinker Biddle & Reath | $20K |
| 24/10/17for Q3 2024 | Ipolicy Solutions | Under $5,000 |
| 24/07/22for Q2 2024 | Faegre Drinker Biddle & Reath | $20K |
| 24/07/17for Q2 2024 | Ipolicy Solutions | $25K |